5th Annual Hallie Grace Memorial Butterfly Ball for EB

Heroes for Hallie Grace to Host 5th Annual Butterfly Ball Celebrating Hallie Grace’s Golden Birthday and Supporting Families Affected by Epidermolysis Bullosa
Savannah, Georgia – June 5, 2026 – Heroes for Hallie Grace, a Savannah-based nonprofit organization dedicated to supporting families affected by Epidermolysis Bullosa (EB), will host its 5th Annual Hallie Grace Memorial Butterfly Ball on June 5, 2026, at the Charles H. Morris Center at Trustees’ Garden.
This year’s theme, “Somewhere Over the Rainbow: Hallie Grace Turns 5,” marks a particularly meaningful milestone. June 5 would have been Hallie Grace’s fifth birthday—a Golden Birthday—and the evening will celebrate her enduring legacy while raising awareness and support for children and families living with EB, a rare and painful genetic skin disorder often referred to as “the worst disease you’ve never heard of.”

Founded in memory of Hallie Grace Davis, Heroes for Hallie Grace works to bridge critical gaps in support for EB families through personalized Welcome Boxes for newly diagnosed families, Wings of Care assistance for urgent needs, and Forever in Flight Memorial Boxes for families who have lost a child to EB.

“Hallie was with us for only three months, but her impact continues to ripple outward in ways we never imagined,” said Dr. Anna Davis, Founder and President of Heroes for Hallie Grace. “This event is about honoring her life, celebrating the strength of the EB community, and creating hope for families facing challenges no one should have to face alone.”
Guests will enjoy an elegant evening featuring dinner, entertainment, raffles, auctions, commemorative keepsakes, and opportunities to learn more about the mission of Heroes for Hallie Grace. Funds raised during the event will directly support programs serving EB families across the United States.

Since its founding, Heroes for Hallie Grace has provided tangible support, resources, advocacy, and connection for families navigating the challenges of EB. The organization continues to expand its reach through community partnerships, awareness initiatives, and direct family assistance.

Community members, business leaders, donors, and supporters are invited to attend and help celebrate five years of hope, impact, and Hallie’s enduring light.
For more information, tickets, sponsorship opportunities, or donations, visit HallieFlies.com.

About Heroes for Hallie Grace
Heroes for Hallie Grace is a 501(c)(3) nonprofit organization founded in memory of Hallie Grace Davis, a child born with Junctional Epidermolysis Bullosa (JEB). The organization’s mission is to provide support, resources, advocacy, and hope to individuals and families affected by EB while honoring Hallie’s legacy through acts of compassion and service.