The 4th Annual Hallie Grace Memorial Butterfly Ball for EB will take place on June 6, 2025 from 6-10pm at the gorgeous Charles H. Morris Center at the Trustees Garden in celebration of what would have been our sweet angel Hallie Grace’s 4th birthday and 100% of the proceeds goes towards the fight against the genetic disorder that took her life, Epidermolysis Bullosa (EB), to help prevent future families from going through the same thing.
Tickets start at S65 for General Admission; S100 for VIP [includes 2 free drinks, a reserved seat during the event, and a VIP Swag Bag, and the event is family friendly (children ages 5-12 are $25 and children under the age of 5 are free). Guests can also purchase a butterfly to release in memory of Hallie Grace Davis or their own loved ones. All names will be read aloud as the butterflies are released. Tickets and butterflies can be purchased here: https://onecau.se/halliegrace
A delicious full dinner service is generously provided by Metro Diner in Pooler and Hallie’s birthday cake is lovingly created by Savannah Rum Runners Bakery.
Cash bar will feature a signature drink, The Halliefly, which changes color in front of your eyes! There will be live performance and Savannah’s Best DJs, All About You Entertainment, who will provide a fun photo booth as well as hours of dancing fun! The community has truly come together to provide amazing donations for the Silent Auction as well as a raffle you do not want to miss (and you must be in attendance to win). Several more surprises to come!
Join us to help us Cure EB! For more information on Epidermolysis Bullosa, visit Hallieflies.com
“What a fun night for a great cause! I’ll be back next year and I’m bringing 10 friends with me! – Guest from the previous year
“There’s not a person in Savannah that should not be there!” – Tyler Cobbs of GoAssistantly
Heroes for Hallie Grace Inc. was created in loving memory of forever3-month-old Hallie Grace Davis, who was born with the rarest and most terminal type of Epidermolysis Bullosa (EB). Epidermolysis Bullosa is a single mutation genetic condition that stops the body from producing a needed protein to hold the skin together, so it blisters and tears with any friction. It is known as “the worst disease you’ve never heard of” and there is currently only 2 FDA-approved treatments and no cure. Our mission is to ultimately change that! The nonprofit specifically focuses on raising awareness, funding important research, and improving quality of life for individuals and their families impacted by EB, and every dollar raised during this event goes directly to that cause. Please join us for an amazing night full of fun, education, and fundraising! We would be honored if you would help us continue to build Hallie’s legacy and join her fight!
